Thoughts and experiences from the scoliosis diagnosis through surgery and recovery. As told from the perspectives of parents, Mom and Dad, and the patient, Princess Pants.
What a difference a day makes
Now, she can talk - almost audibly, eat and roll from side to side. She watched a movie and decided it was time for bed - I may soon join her as I am spent and I doubt it will be a truly restful night.
I wandered in to the Ronald McDonald House room on this floor - free coffee and snacks until 11. Colonel Sanders adorns the wall outside of 3 B and in the hall one of the wings is sponsored by Walmart.
And lastly for tonight's ramblings, the hospital is selling a stuffed something and neither Andrew nor I were certain what it is - possibly a pig with horse legs :)
Thanks for hanging in here with us, I don't think we can articulate how much your collective support has helped us get through these last 36 hours.
As of 2:30 Avery was back lying down and overachieving in every category. She burped and that was a big deal so they gave her a Popsicle (mango, her favourite) and she immediately started talking better. She was also allowed some water. The hard part is going to be slowing her down! She wants to do everything she can and we have to remind her to let the nurses do the work and she needs to just relax. Such a fighter.
Jodi slept not too badly and will likely sleep not too badly tonight so Avery said it was okay if I went home and got some rest and saw The Dude. I'll relieve Jodi on the day shift tomorrow. All things considered things are going as expected now in spite of the rocky night and rough morning.
My brain is mush, so hopefully this update made some sense. I'm going to take a nap.
We've been at the hospital for 24 hours. Let me tell you that the first 12 hours were a cake walk compared to the 12 that came after and the 12 that are ahead.
Extubation happening this morning. Hopefully the fever is under control. Jodi stayed in the room and got a bit of sleep after a couple bouts of excitement. I grabbed a couple zzz's on some chairs. Princess Pants is strong and fighting. Some good kicks and resistance to the nurses (trying to keep her tube in).
No machines are beeping at the moment. This is a good thing. The sound of the ventilator overpowers the quiet room. I'm afraid to move and upset the Feng Shui.
Something just beeped and woke Jodi up. The nurse came in. One of the many bags of something feeding her medication was due for anorher dose. It was the sedative. They'll be waking her up soon.
I'm going to get a coffee and brush my teeth.
4:32 am from the Pediatric ICU
To survive the surgery, Avery not only needed the blood donation Andrew provided, but 3 or 4 times what he was able to give. So I will once again echo the sentiment - if you can, please give blood. If it wasn't for the generosity of strangers, she might not be lying beside me right now.
I kicked Andrew out of the room to try to get some sleep in the family lounge, and I have checked on him twice and he seems to be getting some sleep I am glad, because tomorrow when they extubate her, we are going to need all outer strength, emotional and physical to help her recover.
I did, however see her eyes slit open for a second, and she was kicking and flailing when the nurses moved her, so there is one big sigh of relief - all her bits work :)